Taryn's been dry for TWO days now! And get this, she's been clean for TWO days too! Wowee!
Yesterday she stayed dry all day at daycare in a pull-up, and today she was eager to wear undies after going to the potty this morning. She kept them dry and clean all day and when we went out to an indoor playground this evening, she kept her pull-up dry and clean whilst there too. I am just amazed and blown away. She's getting a marshmallow for every wee and a prize from the prize box for every poo. Little wee's that she just manages to push out, even though she went 10 minutes ago, get half a marshmallow. LOL
We've continued to read her personalised potty book to her every night. Today she announced that she needed to go make a wee, "cos her body was telling her it needed to" Wow, wow, wow - something's going in. She's just so excited and proud of herself. She keeps saying to herself, "I'm so proud of me!"
And speaking of proud, I'm so proud of Jen tonight. This evening we went to a function for all the families of an organisation we are with that provides us with respite care for Jess. Taryn gets it too by default of being a sibling. :D Anyway, the function was at an indoor playground that had been hired for our group's use only. It was wonderful and amazing. We met some great parents and some great kids. One particular young lady with an intellectual disability and cerebral palsy was quite taken with us, and especially taken with Jen. (12yrs) She was signing to Jen, and Jen chatted and signed naturally back with her. She took the time and trouble to be with her, talk with her and find a way of communicating with her. She responded to what this young lady was signing to her and did it all normally. I was just so, so proud. Jen could have made an excused hasty exit at any point, but she didn't. She carried herself with grace and dignity and in doing so showed so much respect.
We met some great kids. Some we knew from other support groups for parents of kids with disabilities. Some were new. There was a young boy who spent a considerable amount of time in the disco room happily watching the spinning lights. A young girl of 6 with epilepsy. A little boy with a tracheostomy. Kids with cerebral palsy, kids with intellectual disabilities, kids who were visually impaired, kids who were deaf. Kids from the whole spectrum of disability and their siblings. It was a wonderful experience.
Nobody thought anyone else's kids unusual. Nobody made comments about kids playing in the 'wrong area' for their age. It didn't matter. The kids went everywhere and gravitated towards where they were able to go and interested in being. Didn't matter if a 10yr old was in the 3yr and under area. No-one thought anyone elses kids rude or bad mannered if they bumped someone or walked past someone a little too closely. The evening was full of little scenarios of kids being kids. Kids just being free to be who they were. Kids free of judgement. It was truly a beautiful thing because so many times in life we apologise for our kids and try to explain that our perfectly normal looking child has an intellectual delay and doesn't understand yet. Tonight, for once, we didn't have to explain.
We've continued to read her personalised potty book to her every night. Today she announced that she needed to go make a wee, "cos her body was telling her it needed to" Wow, wow, wow - something's going in. She's just so excited and proud of herself. She keeps saying to herself, "I'm so proud of me!"
And speaking of proud, I'm so proud of Jen tonight. This evening we went to a function for all the families of an organisation we are with that provides us with respite care for Jess. Taryn gets it too by default of being a sibling. :D Anyway, the function was at an indoor playground that had been hired for our group's use only. It was wonderful and amazing. We met some great parents and some great kids. One particular young lady with an intellectual disability and cerebral palsy was quite taken with us, and especially taken with Jen. (12yrs) She was signing to Jen, and Jen chatted and signed naturally back with her. She took the time and trouble to be with her, talk with her and find a way of communicating with her. She responded to what this young lady was signing to her and did it all normally. I was just so, so proud. Jen could have made an excused hasty exit at any point, but she didn't. She carried herself with grace and dignity and in doing so showed so much respect.
We met some great kids. Some we knew from other support groups for parents of kids with disabilities. Some were new. There was a young boy who spent a considerable amount of time in the disco room happily watching the spinning lights. A young girl of 6 with epilepsy. A little boy with a tracheostomy. Kids with cerebral palsy, kids with intellectual disabilities, kids who were visually impaired, kids who were deaf. Kids from the whole spectrum of disability and their siblings. It was a wonderful experience.
Nobody thought anyone else's kids unusual. Nobody made comments about kids playing in the 'wrong area' for their age. It didn't matter. The kids went everywhere and gravitated towards where they were able to go and interested in being. Didn't matter if a 10yr old was in the 3yr and under area. No-one thought anyone elses kids rude or bad mannered if they bumped someone or walked past someone a little too closely. The evening was full of little scenarios of kids being kids. Kids just being free to be who they were. Kids free of judgement. It was truly a beautiful thing because so many times in life we apologise for our kids and try to explain that our perfectly normal looking child has an intellectual delay and doesn't understand yet. Tonight, for once, we didn't have to explain.
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